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Coping

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Introduction
"You receive the diagnosis and, without any preparation, you're thrust into an intimidating and alien world of white coats and treatment protocols. Suddenly, your whole life is disrupted and your future is, at best, uncertain. It's all so incomprehensible, so frightening and lonely - not just for you - but for everyone involved with you ...."

The above quote, from a man with Hodgkin lymphoma, illustrates that few experiences are as devastating as learning that you or someone you love has a life-threatening illness.

It is difficult not to focus on dying. It's not unusual to think about death when you're confronted with an illness that threatens life. Yet, the reality is that many people will survive, or live for years after their diagnosis; survival brings with it a whole new set of concerns that cannot be addressed by chemotherapy, radiation or surgery.

The purpose of this booklet is to address the stresses shared by those with a blood cancer diagnosis. We will be taking a look at some of the emotions and issues that commonly arise during each phase of the illness, from before diagnosis through life after recovery. No two people with leukemia, lymphoma or myeloma are alike, nor are any two relatives or friends of someone with one of these illnesses the same. Still, people in similar situations often share similar experiences and feelings. Although each person must deal with illness in an individual way, it can sometimes be helpful to see how others have learned to cope with their circumstances.

This booklet provides information for patients and families who are affected by leukemia, lymphoma or myeloma. We hope this information is of assistance. We would welcome comments as to the clarity of the information or suggestions for additional information that would be helpful.

This booklet is intended to serve only as a guide to help you explore coping strategies as you face the challenges of your disease. Some of the material presented may not be relevant to you or your circumstances. Our hope is that by seeing how others are dealing with their disease, you may feel a little less alone and can begin to find your own ways of coping.

The information that follows has been compiled from books and articles about the psychosocial impact of leukemia and other blood cancers. We have also spoken with healthcare professionals and people who have these illnesses as well as their families and friends.

The Leukemia & Lymphoma Society would like to acknowledge Marie Luria, M.S.W., L.C.S.W. for her review of the current edition of Coping: Support for People Living with Leukemia, Lymphoma or Myeloma.



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last updated on 01/19/06

The Leukemia & Lymphoma SocietyŽ (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.
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