In the United States about 12,156 children under the age of 20 are expected to be diagnosed with cancer in 2005. Of these children, about 3,521 will be affected by leukemia and about 1,628 by Hodgkin and other lymphomas. Significant progress has been made in the treatment of childhood blood cancers over the past four decades. Survival rates for children with acute lymphocytic leukemia have improved dramatically. Hodgkin lymphoma now is the most curable childhood cancer. Many survivors have entered the work force, have married, and have had children.

Not every child with leukemia or lymphoma is guaranteed a cure. Progress in some types of leukemia, such as acute or chronic myelogenous leukemia, has been substantial but slow. Children with blood cancers may face years of illness, treatment, treatment-related stress and post-treatment adjustments.

This book is written for parents of young children and adolescents with leukemia or lymphoma who are trying to cope with a most difficult situation. It is for parents who seek support to face and deal with the illness. When parents seek and obtain help to cope with the experience, their children benefit. Although diagnosed with a physical illness, children with these cancers can be in an emotionally healthy environment, and benefit from support for their continued growth and development.

Communication with all the children in the family is equally important. Brothers and sisters of children with leukemia or lymphoma are also affected by the illness. Parents may find that by listening to their other children and giving them ample opportunity to voice their concerns, the family is able to establish a lasting pattern of honesty and openness.

Although aimed primarily at parents of children with leukemia or lymphoma, this booklet is also useful to families with children affected by other cancers. Many parents shared their stories with us. We share their experiences with you, along with the experience of psychologists, psychiatrists, social workers, physicians and nurses who help families deal with the emotional aspects of their child's illness.

Patricia Deasy-Spinetta, M.A., M.S., N.C.S.P.
Psychologist, San Diego Unified School District

John J. Spinetta, Ph.D.
Professor of Psychology, San Diego State University
Faith H. Kung, M.D.
Associate Professor of Pediatrics, University of California, San Diego School of Medicine

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