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Welcome to LeukemiaLinks, your monthly source of leukemia news, research updates, clinical trials and events sponsored by The Leukemia & Lymphoma Society (LLS). For even more information, regularly visit our Patient Services and
Disease Information Web sections. | |
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LLS Features ::READ MORE::
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Research Roundup
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IRC Question of the Month ::
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Inspirational Stories
 Learn how individuals touched by blood cancer cope. The LLS LifeMosaic
Web feature offers hundreds of inspiring stories by patients and families. Read them or submit your own. This month, read about Karin Chase. |
Here to Help
For even more information, regularly visit the LLS Web site, www.LLS.org, where many of our education programs are archived free of charge for convenient access 24/7.
If you haven't found what you're looking for in LeukemiaLinks
, please call our Information Resource Center (IRC) to speak with trained information specialists. IRC staff are available Monday through Friday, 9 a.m. to 6 p.m. ET, toll free at (800) 955-4572; email infocenter@lls.org; or click the "Live Patient Help" button on the
www.LLS.org homepage.
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Commentary
Deborah Banker, Ph.D., reports on promising new research that was presented at the recent prestigious American Society of Clinical Oncology meeting.
Clinical Trials
We invite you to use our LLS-supported
TrialCheck® Web site, a clinical trial search service that offers patients and caregivers immediate access to listings of all leukemia clinical trials. Answer just a few simple questions and a list of available clinical trials related to your cancer will appear in an easy to read list of search results.
You may also want to visit the National Cancer Institute's Cancer Trials Support Unit, providing resources and information on Phase III cancer treatment trials supported by the National Cancer Institute. ::
SELECTED TRIALS::
Newsfeeds & Podcasts
Now you can get RSS Feeds and Podcasts from LLS.
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Free eNewsletters
Free LLS eNewsletters deliver the latest information on research and treatment options, patient services programs and fundraising events.
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My Personal CML Journey
LLS is proud to offer My Personal CML Journey, an interactive, online video education program. The feature follows the stories and experiences of two chronic myelogenous leukemia (CML) survivors. Learn more.
My Clinical Trials Journey
Participate in this personalized and interactive program that follows the stories and experiences of three cancer survivors who have participated in clinical trials.
Co-Pay Assistance Program Broadens Funding
Qualified patients with chronic myelogenous leukemia can now receive up to $5,000 in assistance from LLS' Co-Pay Assistance Program. The aid helps offset prescription drug co-pays and other insurance-related expenses according to disease diagnosis.
Clinical Trial Recruitment -- LLS, through its Therapy Accelerator Program, is collaborating on several clinical trials that are actively recruiting. One of these trials is designed for Leukemia patients, Trial of CPX-351 in Adult Patients With First Relapse Acute Myeloid Leukemia (AML)
and is recruiting in New York City and Houston, Texas. For more information about these trials, see the Therapy Accelerator Program section of
lls.org.
LLS Advocacy
LLS's advocacy team represents the needs of cancer patients and their families in Washington, DC and state capitals throughout the United States. We need your help.
Join our Advocates Network and make your voice heard.
ACT NOW! Urge Congress to Co-Sponsor Access to Cancer Clinical Trials Legislation
Patient Services Survey
Please give us your feedback by completing LLS Disease & Treatment Publications - Survey for Patients, Family and Friends.
LLS Blog
The Leukemia & Lymphoma Society is committed to curing blood cancers and helping patients and their families. Learn the many ways you can help advance LLS's mission.
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Six-year Follow-up of Patients Receiving Imatinib for the First-Line Treatment of Chronic Myeloid Leukemia ::READ MORE::
Fludarabine in the Treatment of Chronic Lymphocytic Leukemia: A Review ::READ MORE::
Second Neoplasms in Survivors of Childhood Cancer: Findings from the Childhood Cancer Survivor Study Cohort ::READ MORE::
Emerging Treatment Strategies for Acute Myeloid Leukemia (AML) in the Elderly ::READ MORE::
Risk Factors for Therapy-Related Myelodysplastic Syndrome and Acute Myeloid Leukemia Treated with Allogeneic Stem Cell Transplantation ::READ MORE::
Dasatinib in the Treatment of Chronic Myeloid Leukemia in Accelerated Phase after Imatinib Failure: The START A Trial ::READ MORE::
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 Selected Trials
Methotrexate, Vincristine, Pegylated L-Asparaginase and Dexamethasone (MOAD) in Acute Lymphoblastic Leukemia (ALL) Salvage ::READ MORE::
Alvocidib in Patients with Previously Treated Chronic Lymphocytic Leukemia or Prolymphocytic Leukemia Arising From Chronic Lymphocytic Leukemia (CLL) ::READ MORE::
Phase II: Combination of GTI 2040 and Cytarabine in the Treatment of Refractory and Relapsed Acute Myeloid Leukemia (AML) ::READ MORE::
Trial of CPX-351 in Adult Patients with First Relapse Acute Myeloid Leukemia (AML) ::READ MORE::
Safety, Efficacy, & Pharmacokinetic Study of Tamibarotene to Treat Patients with Relapsed or Refractory APL (STAR-1) ::READ MORE::
Phase III: Nilotinib in Adult Patients with Imatinib-Resistant or Intolerant Chronic Myeloid Leukemia in Blast Crisis, Accelerated Phase or Chronic Phase (ENACT) ::READ MORE::
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IRC Question of the Month
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Q: I have just started chemotherapy, and I enjoy going to the beach in the summer. Are there any precautions I should take?
A: Everyone should reduce their exposure to the harmful effects of the sun's ultraviolet (UV) rays because of the risk of skin cancers. In addition, patients with leukemia should avoid all direct sun exposure after completing certain drug and/or radiation therapy. Treatment often makes the skin more sensitive to the effects of the sun.
Skin-related side effects of treatment may include dryness, redness, itchiness or lesions. These may occur during and after drug or radiation therapy. Patients should check with their treatment teams about specific sun-related effects of their therapy. They may be related to treatment, to the disease itself or to complications such as infection. If you're preparing a vacation that may include sun exposure it is best to get a medical guidance about appropriate precautions, including topical solutions (creams, lotions or gel) to protect, soothe, soften or moisturize skin or to prevent itching.
Plan outdoor activities for early morning or late afternoon. Seek natural shade from trees or other shelter. UV rays are reflected by sand, water and snow; so take extra care when on a beach, boating or skiing holiday. Use a sunscreen with a sun protective factor (SPF) of 15 or higher in general and choose one that protects against all of the sun's rays. Wear an SPF 30 sunscreen on any areas directly affected by treatment with radiation. Sunscreen must be reapplied after swimming or sweating.
If you lose your hair because of therapy, protect your head from sun exposure and irritation by wearing soft hats or scarves. Wearing a wide-brimmed hat, long-sleeved shirts and trousers when in the sun is also suggested. Try to avoid lightly woven fabrics as they may allow rays through. New clothing lines have been developed to protect against UV rays.
Please call our Information Resource Center (IRC) to speak with a trained information specialist. IRC staff are available Monday through Friday, 9 a.m. to 6 p.m. ET, toll free at (800) 955-4572.
Contact us online or click the "Live Patient Help" button on the www.LLS.org homepage.
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Supported by an unrestricted
educational grant from
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Contact Us: The Leukemia & Lymphoma Society, 1311 Mamaroneck Ave., White Plains, NY 10605, (800) 955-4572
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