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Welcome to LeukemiaLinks,
your monthly source of leukemia news, research
updates, clinical trials and events sponsored
by The Leukemia & Lymphoma Society
(LLS). For even more information, regularly
visit our Patient
Services and Disease
Information Web
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LLS Features
::READ MORE:: ..................................................................................................................................... Research
Roundup ::READ MORE:: ..................................................................................................................................... IRC Question of
the Month
:: READ
MORE::
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Inspirational
Stories
Learn
how individuals touched by blood cancer
cope. The LLS LifeMosaic
Web feature offers hundreds of
inspiring stories by patients and families. Read
them or submit
your own. This month, read about Tanya. | Here to
Help
For even more information,
regularly visit the LLS Web site, www.LLS.org, where many of our education programs
are archived free of charge for convenient
access 24/7.
If you haven't found what
you're looking for in LeukemiaLinks ,
please call our Information Resource Center
(IRC) to speak with an information
specialist. IRC staff are available Monday
through Friday, 9 a.m. to 6 p.m. ET, toll free
at (800) 955-4572; email infocenter@lls.org; or click the "Live Patient Help" button
on the www.LLS.org homepage.
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Commentary Deborah Banker, Ph.D., shares exciting
advances in stem
cell
transplantation.

Clinical
Trials We invite you to use
our LLS-supported TrialCheck® Web
site, a clinical trial search service that
offers patients and caregivers immediate access
to listings of all leukemia clinical
trials. Answer just a few simple questions and a
list of available clinical trials related to
your cancer will appear in an easy to read list
of search results. :: SEE CLINICAL TRIALS::
You may also
want to visit the National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on Phase III cancer treatment trials
supported by the National Cancer
Institute.

Newsfeeds &
Podcasts Now
you can get RSS Feeds and Podcasts from LLS.
::CLICK HERE TO SIGN
UP::

Free
eNewsletters Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events. ::CLICK HERE TO SIGN UP
::
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Register for free
telephone/webcast education
programs:
- ŸThe
Pediatric Treatment Approach to Adult Acute
Lymphocytic Leukemia: Perspectives for
Oncology Nurses
This program will take
place on Thursday, November 19, 2009 from
12-1:30pm ET with featured speakers Barton
Kamen, MD, PhD, Chief Medical Officer, The
Leukemia & Lymphoma Society, White Plains,
NY, Professor of Pediatrics and Pharmacology,
The Cancer Institute of New Jersey, UMDNJ -
Robert Wood Johnson Medical School, New
Brunswick, NJ and Katherine A. Breitenbach, BA,
RN, Clinical Research Nurse, Section of
Hematology/Oncology, University of Chicago
Medical Center, Chicago, IL. Participants will
have the opportunity to ask the presenters
questions during the program.
- Understanding
AML: From Diagnosis to Treatment
This
program will take place on Tuesday, November 24,
2009 from 12-1pm ET with featured speaker Elihu
H. Estey, MD, Professor of Medicine, Division of
Hematology, University of Washington School of
Medicine, Member, Fred Hutchinson Cancer
Research Center, Seattle, WA, Adjunct Professor,
The University of Texas, M. D. Anderson Cancer
Center, Houston, TX. Participants will
have the opportunity to ask the presenter
questions during the program.
- New
Developments in CLL from the American Society of
Hematology (ASH) Annual Meeting
This
program will take place on Thursday, December
10, 2009 from 1-2pm ET with featured speaker
Susan O'Brien, MD, Professor of Medicine,
Department of Leukemia, The University of Texas
M.D. Anderson Cancer Center, Houston, TX.
Participants will have the opportunity to ask
the presenter questions during the program.
- Current
Treatment Options for CML: Progress in
Research
This program will take place on
Tuesday, December 15, 2009 from 1-2:30pm ET with
featured speakers Michael J. Mauro, MD,
Associate Professor, Center for Hematologic
Malignancies, Knight Cancer Institute at Oregon
Health & Science University, Portland, OR
and Neil P. Shah, MD, PhD, Assistant Professor,
Division of Hematology/Oncology, Department of
Medicine, University of California, San
Francisco School of Medicine, San Francisco, CA.
Participants will have the opportunity to ask
the presenters questions during the
program.
My
Personal CLL Journey LLS is proud to
offer My Personal CLL Journey, an
interactive program following the story and
experience of Mike, a CLL survivor. Kanti Rai,
MD, of the Long Island Jewish Hospital and
Physician Assistant Nancy Driscoll provide
expert insights along the way.
LLS
Advocacy LLS's advocacy team represents
the needs of cancer patients and their
families in Washington, DC and state
capitals throughout the United States. We need
your help. Join our
Advocates Network and make your
voice
heard.
Act
Now! - Urge Congress to Improve Comprehensive
Cancer Care
We'd Like to Hear from
You! Please give us your feedback
after you read an LLS Publication by completing
our evaluation: LLS
Disease & Treatment Publications - Survey
for Patients, Family and Friends
Nos gustaría saber sus
opiniones Por favor denos sus
comentarios después de leer una publicación de
LLS completando nuestra evaluación: Publicaciones
de LLS sobre enfermedades y tratamiento:
Encuesta para pacientes, familiares y
amigos
LLS Blog
The
Leukemia & Lymphoma Society is committed to
curing blood cancers and helping patients and
their families. Learn
the many ways you can help advance
LLS's mission.
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Subcutaneous Alemtuzumab in
Fludarabine-Refractory Chronic Lymphocytic
Leukemia: Clinical Results and Prognostic Marker
Analyses from the CLL2H Study of the German
Chronic Lymphocytic Leukemia Study Group ::READ
MORE::
Dasatinib in the treatment of
chronic myeloid leukemia in accelerated phase
after imatinib failure: the START a trial. ::READ
MORE::
Proteomics-based prediction of
clinical response in acute myeloid leukemia.
::READ
MORE::
Favorable outcomes with
alemtuzumab conditioned unrelated donor stem
cell transplantation in adults with high risk
Philadelphia chromosome negative acute
lymphoblastic leukemia in first complete
remission. ::READ
MORE::
Dasatinib-associated major
molecular responses in patients with chronic
myeloid leukemia in chronic phase following
imatinib failure: response dynamics and
predictive value. ::READ
MORE::
> Back to the
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Quality of Life in Younger
Leukemia and Lymphoma Survivors ::READ
MORE::
Phase II Nilotinib with Newly
Diagnosed Chronic Phase Chronic Myelogenous
Leukemia (CML) ::READ
MORE::
Phase II: CLAG Gleevec in
Relapsed or Refractory Acute Myeloid Leukemia
(AML) ::READ
MORE::
Phase II Study of Lenalidomide
to Evaluate Safety and Efficacy in Patients with
Relapsed or Refractory Chronic Lymphocytic
Leukemia ::READ
MORE::
Phase III: Combination
Chemotherapy in Treating Young Patients with
Relapsed or Refractory Acute Lymphoblastic
Leukemia ::READ
MORE::
>
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IRC Question of
the Month
|
Q:
How can I be an active
participant in my care?
A:
You can play a vital role in your wellbeing by
being involved in your own care. Participating
can help you understand how your disease is
being managed, make informed decisions and feel
more in control of your life.
5 Important
Steps for Participating in Your
Healthcare
1. Learn all you can
about your diagnosis.
- Know your specific
disease type, stage of disease and what all of
your potential treatment options are, including
treatments in clinical trials.
2. Get the most from
your meetings with your doctor and other members
of your healthcare
team.
- Prepare ahead of your
medical appointments. Bring a list of questions
and concerns with you. Maintain a list in
between appointments so you can record questions
and concerns as they arise. Be assertive. Ask
questions until you receive a complete
explanation. If your doctor provides information
that is too technical or limited in scope, ask
that he/she provide you with information that is
more patient-friendly. Take notes or tape record
the session so you can easily recall and review
the responses at a later time. If possible,
bring someone with you to appointments to take
notes and be a second "pair of
ears."
3. Follow medical
advice.
- Keep all medical
appointments. Take at-home medications as
instructed. Following instructions for
preventing infections. Maintain healthy diet,
exercise and sleep habits.
4. Keep a file with
copies of your medical records and other
diagnostic and treatment
information.
- Keep copies of your
medical history, your test results and the
medications used to treat you. Include you
started and stopped medications, any side
effects, a list of medications you take for
other health reasons, such as blood pressure
medication. Keeping copies and/or recording key
information will enable you to refer it for
discussions with members of your healthcare
team.
5. Seek support and
network with other people who have your
diagnosis.
- This is an excellent
way to learn more about the disease, what to
expect from treatment, share common concerns and
gain support.
To help you
advocate for yourself, LLS offers you
- Educational materials
that provide this helpful information regarding
blood cancers. Click
here for free Disease, Treatment and Support
booklets and fact
sheet.
- A
clinical trial service using an easy search tool
and/or our Information Specialists . In
fact, if you have any questions about leukemia,
lymphoma or myeloma give our information
specialists a call at 1-800-955-4572 or contact
us online. We're available Monday through
Friday from 9 a.m. to 6 p.m.
ET.
- Free live telephone
and Web-based education programs that feature
disease experts who present information about
the latest on disease research and treatment. If
you are unable to take part the day of the
program, an audio and written transcript on
saved our Web site. Click
here for more information. To be notified by
email of our upcoming programs you may register,
for email alerts, on our homepage (www.LLS.org).
- Support services all
over the United States and Canada to meet the
needs of patients, caregivers and families.
Please contact your local chapter office to
learn more and become active. To identify your
local chapter, input your Zip or Postal Code in
the Chapter Finder tool on our homepage ( www.LLS.org).
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact
us online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
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unrestricted educational grant
from
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Contact Us: The
Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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