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Welcome
to LymphomaLinks,
your monthly source of lymphoma news, research
updates, clinical trials and events sponsored by
The Leukemia & Lymphoma Society (LLS). For
even more information, regularly visit
LLS's Patient
Services and Disease
Information Web
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LLS
Features
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Research
Roundup
::READ MORE::
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IRC Question of
the Month
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MORE::
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Inspirational
Stories
 Learn how individuals touched
by blood cancer cope. LLS's LifeMosaic Web feature offers
hundreds of inspiring stories by patients and families. Read
them or submit your own. This
month, meet the Rebecca
Johnson
Gray. |
Here to
Help
For
even more information, regularly visit the LLS
Web site,
www.LLS.org
,
where many of our education programs are
archived free of charge for convenient access
24/7.
If you haven't found what you're
looking for in LymphomaLinks , please
call our Information Resource Center (IRC) to
speak with trained information specialists. IRC
staff are available Monday through Friday, 9
a.m. to 6 p.m. ET, toll free at (800) 955-4572;
email
infocenter@lls.org
;
or click the "Live Patient Help" button on
the www.LLS.org
homepage.
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Commentary
Deborah Banker, Ph.D., shares more
news on cancer stem
cells.
Clinical
Trials
We
invite you to use
our LLS-supported TrialCheck®
Web site, a clinical trial search service
that offers patients and caregivers immediate
access to listings of
all lymphoma clinical trials. Answer
just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy to read list of search
results.
You may also want to visit the
National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on phase III cancer treatment trials
supported by the National Cancer
Institute
. ::SELECTED TRIALS::
Newsfeeds &
Podcasts
Now you can get
RSS Feeds and Podcasts from LLS.
::CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
:: CLICK HERE TO SIGN
UP::
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Radiation
Exposure Tied to Lymphoma Risk in
Men
Although there is a considerable
delay between exposure to ionizing radiation and
death from lymphoma, these events do appear to
be connected, researchers report in the April
15th issue of the American Journal of
Epidemiology.
Few
Physicians Support Private Banking Of Umbilical
Cord Blood
A survey of physicians has
found broad support for the position that
parents should not bank their newborns'
umbilical cord blood in a private blood bank
unless another member of the family is at risk
for a blood disease that will require a stem
cell transplant.
FDA
Warns About Risk of Wearing Medicated Patches
During MRIs
Certain adhesive patches that
deliver medication through the skin have been
found to be a risk to patient safety. The
patches, if worn while undergoing magnetic
resonance imaging scans or MRIs, can cause skin
burns, says the U.S. Food and Drug
Administration.
> Back
to the
top
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My
Personal Lymphoma Journey
This unique
interactive Web program follows the stories and
experiences of lymphoma survivors, including a
new story of a follicular lymphoma survivor. The
guest physician is John Leonard, M.D., of Weill
Cornell Medical College. We hope this program
helps you to learn more about the lymphoma
journey, and resources that are available to you
and other lymphoma
survivors.
My
Clinical Trials Journey
Personalized and
interactive program that follows the stories and
experiences of three cancer survivors who have
participated in clinical trials, including a
lymphoma survivor. Their stories of hope and
determination are compelling. Ann Pirro,
Physician's Assistant at Queens Medical Center,
provides expert insights along the
way.
LLS Advocacy
LLS's advocacy team represents the needs
of cancer patients and their families in
Washington, DC and state capitals
throughout the United States. We need
your help. Join our Advocates
Network and make your voice heard.
Take Action: Urge
Congress to Co-Sponsor Access to Cancer Clinical
Trials
Find
out about updates to COBRA covered by the
Recovery Act signed into law on Feb.
17.
Patient
Services Survey
Please give us your
feedback by completing LLS Disease &
Treatment Publications - Survey for Patients,
Family and Friends.
LLS Blog
Showcase your support
with these offers from our partners:
- Bring LLS/TNT to your Mozilla
Firefox Browser! Personalize your browser with
LLS and TNT skins. Click
here for details.
- You can now have an LLS- or
TNT-branded VISA credit card, personalized
with any image you choose. LLS will receive
$50 for each card used plus a percentage of all
purchases. Click
here for
details.
Learn the many ways you can help advance the
LLS mission, including making a donation.
Find
out more about our other
eNewsletters.
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Other Malignancies in
Chronic Lymphocytic Leukemia/Small Lymphocytic
Lymphoma ::READ
MORE::
Natural History of CNS
Relapse in Patients with Aggressive
Non-Hodgkin's Lymphoma: A 20-Year Follow-Up
Analysis of SWOG 8516-The Southwest Oncology
Group ::READ
MORE::
CNS Events in Elderly
Patients with Aggressive Lymphoma Treated with
Modern Chemotherapy (CHOP-14) with or without
Rituximab: An Analysis of Patients Treated in
the RICOVER-60 Trial of the German High-Grade
non-Hodgkin Lymphoma Study Group (DSHNHL) ::READ
MORE::
Vaccination with
Autologous Tumor-Loaded Dendritic Cells Induces
Clinical and Immunologic Responses in Indolent
B-cell Lymphoma Patients with Relapsed and
Measurable Disease: A Pilot Study ::READ
MORE::
Impact of the
Methotrexate Administration Dose on the Need for
Intrathecal Treatment in Children and
Adolescents with Anaplastic Large-Cell Lymphoma:
Results of a Randomized Trial of the EICNHL
Group ::READ
MORE::
ABVD Compared with
BEACOPP Compared with CEC for the Initial
Treatment of Patients with Advanced Hodgkin's
Lymphoma: Results from the HD2000 Gruppo
Italiano per lo Studio dei Linfomi Trial ::READ
MORE::
Quality of Life during
Maintenance Therapy with the Anti-CD20 Antibody
Rituximab in Patients with B cell non-Hodgkin's
Lymphoma: Results of a Prospective Randomized
Controlled Trial ::READ
MORE::
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Selected
Trials
Phase III Study of the
Combination of Rituximab, Cyclophosphamide,
Doxorubicin, VELCADE, and Prednisone or
Rituximab, Cyclophosphamide, Doxorubicin,
Vincristine, and Prednisone in Patients with
Newly Diagnosed Mantle Cell Lymphoma
::READ
MORE::
Bortezomib and Rituximab as
First-Line Therapy in Treating Patients with
Low-Grade B-Cell Non-Hodgkin's Lymphoma
::READ
MORE::
A Pivotal Open-Label Trial of
SGN-35 for Hodgkin Lymphoma ::READ
MORE::
Reduced Duration Standford V
Chemotherapy with Low-Dose Tailored-Field
Radiation for Favorable Risk Pediatric Hodgkin
Lymphoma ::READ
MORE::
Siplizumab, Combination
Chemotherapy, and Rituximab in Treating Patients
with T-Cell or Natural Killer-Cell Non-Hodgkin
Lymphoma ::READ
MORE::
Bortezomib, Doxorubicin
Hydrochloride Liposome, and Rituximab in
Treating Patients with Diffuse Large B-Cell
Lymphoma That Has Relapsed or Not Responded to
Treatment ::READ
MORE::
Phase II/III: Efficacy and
Safety Study of StemEx®, to Treat Subjects with
High Risk Hematologic Malignancies, Following
Myeloablative Therapy (ExCell) ::READ
MORE::
Effectiveness of Topical
Thalidomide to Treat Chronic
Graft-Versus-Host-Disease Related Stomatitis
::READ
MORE::
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Question of
the Month | 
Q: I am being treated for
lymphoma. I'm taking pain medication prescribed
by my doctor but I still have pain. What should
I do?
A: Some patients with
lymphoma have disease and/or treatment-related
pain. Having pain does not necessarily mean your
cancer is getting worse. It's good that you have
sought pain treatment to avoid additional health
problems later on. And it's important that you
continue to seek proper assessment and effective
pain management throughout your treatment and
recovery-untreated pain can suppress the immune
system, delay healing and often leads to
depression.
There are two
main types of pain: acute and chronic. People
taking pain medication may also have
"breakthrough pain" a brief, sometimes severe,
flare of pain. Breakthrough pain can start as
the pain medication is wearing off, before the
next dose is due, or from a pain-producing
activity or event. There are many options
available to manage pain effectively. A
combination of medications and non-drug options
are often prescribed to provide relief. The
approach used to manage your pain will depend on
the cause and type of your pain.
Good communication will help your physician
to understand and treat your pain. Because there
is no objective measure, you play an important
role in achieving good pain control. It's not
unusual to find it difficult to talk about pain
with the doctor. You might have trouble finding
the right words to describe how the pain feels
or you may worry about becoming addicted to pain
medicine. You should know that patients with
persistent pain who require prolonged opioid
therapy, and take these medicines as directed,
have little-to-no risk of developing addictive
disease.
Remember that there are
many ways to manage pain effectively. Tell your
doctor if you have any side effects from your
pain medication. Most side effects from pain
medicine (for example, fatigue, gastrointestinal
problems) can be managed. If your pain is not
adequately controlled ask to be referred to a
pain specialist. For more information on this
topic, including suggestions for how to discuss
pain with your doctor, read, print or order a
free copy of the LLS Pain
Management Fact Sheet at www.lls/org/freematerials
or contact the Information Resource Center for a
copy.
Is the Cost of
Medication is a Concern for You?
If so, discuss this with
your doctor. He or she may assume that your
medical insurance will cover all the costs. Your
doctor may be able to prescribe less expensive
medications or refer you to sources for
financial aid. LLS offers a Patient
Financial Aid Program to help with the cost
of some medications, transportation and
procedures for those in need. LLS also has a
Co-Pay Assistance Program to help with
the cost of insurance co-payments and/or
insurance premium costs for prescription drugs
for some blood cancers. Support for the
Co-Pay Assistance Program is based on
the availability of funds by disease diagnosis;
patients must qualify both medically and
financially.
Please call
our Information Resource Center (IRC) to speak
with a trained information specialist. IRC staff
are available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact us
online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
> Back to the
top
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educational grant
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Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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