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  LymphomaLinks - Your Link to the Latest Lymphoma News  


FEBRUARY 2009 800.955.4572 Email the IRC Forward to a Friend
 

Welcome to LymphomaLinks, your monthly source of lymphoma news, research updates, clinical trials and events sponsored by The Leukemia & Lymphoma Society (LLS). For even more information, regularly visit LLS's Patient Services and Disease Information Web sections.

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Latest Lymphoma News 

Childhood Cancer Survivors Miss Needed Mammograms
Women who were treated with chest radiation for childhood cancer are at increased risk of early breast cancer, but many are not getting the screening tests experts recommend. :: READ MORE NEWS::

LLS Features    ::READ MORE::
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Research Roundup
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IRC Question of the Month   
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Inspirational Stories

Inspirational ImageLearn how individuals touched by blood cancer cope. LLS's  LifeMosaic Web feature offers hundreds of inspiring stories by patients and families. Read them or submit your own. This month, meet Cheryl.


Here to Help

For even more information, regularly visit the LLS Web site,
www.LLS.org , where many of our education programs are archived free of charge for convenient access 24/7.

If you haven't found what you're looking for in LymphomaLinks , please call our Information Resource Center (IRC) to speak with trained information specialists. IRC staff are available Monday through Friday, 9 a.m. to 6 p.m. ET, toll free at (800) 955-4572; email
infocenter@lls.org ; or click the "Live Patient Help" button on the www.LLS.org homepage.

 

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Commentary  
Learn about new techniques for stem cell transplants.

Clinical Trials
We invite you to use our 
LLS-supported TrialCheck® Web site, a clinical trial search service that offers patients and caregivers immediate access to listings of all lymphoma clinical trials. Answer just a few simple questions and a list of available clinical trials related to your cancer will appear in an easy to read list of search results. 

You may also want to visit the National Cancer Institute's Cancer Trials Support Unit, providing resources and information on phase III cancer treatment trials supported by the National Cancer Institute ::SELECTED TRIALS::



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Latest Lymphoma News

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Clinical Trial May Lead to More Effective Treatment for Blood Cancers
Researchers at Indiana University want to find a way to speed up the growth of new cells following umbilical cord blood transplants in adult patients with lymphoma and other blood cancers. 

Rising Cancer Drug Costs Not Fully Controllable Under Medicare
Current regulations are limiting Medicare's ability to control rising spending on cancer drugs, according to The New England Journal of Medicine.

Hospitals Demanding Cash Up Front
The majority of the nation's 4,900 hospitals are beginning to require proof of payment up front for non-emergency needs. Meaning: if it is care you can schedule, the hospital wants to know how you will pay for it. 

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LLS Features

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My Personal Lymphoma Journey
This unique interactive Web feature follows the stories and experiences of lymphoma survivors. The guest physician is John Leonard, M.D., of Weill Cornell Medical College. We hope this program helps you to learn more about the lymphoma journey, and resources that are available to you and other lymphoma survivors. 

LLS Advocacy
LLS's advocacy team represents the needs of cancer patients and their families in Washington, DC and state capitals throughout the United States. We need your help. Join our Advocates Network and make your voice heard. This month's issue: Clinical Trials in Danger- Urge Your Member of Congress to Support HR 2676.

Archived Educational Events
Experience LLS past educational events anytime, anywhere by visiting www.LLS.org. All programs are free.

LLS Blog
Celebrate our blog's first birthday.


Learn the many ways you can help advance the LLS mission, including making a donation. Find out more about our other eNewsletters.



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Research Roundup

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Durable complete responses from therapy with combined epratuzumab and rituximab: final results from an international multicenter, Phase II study in recurrent, indolent, non-Hodgkin lymphoma  ::READ MORE:: 

Phase III Trial of Consolidation Therapy with Yttrium-90-Ibritumomab Tiuxetan Compared with No Additional Therapy after First Remission in Advanced Follicular Lymphoma  ::READ MORE:: 

Haematopoietic SCT for children and adolescents with relapsed and refractory Hodgkin lymphoma  ::READ MORE:: 

Prognostic impact of diffuse large B-cell lymphoma subgroups in patients undergoing autologous SCT  ::READ MORE:: 

A multicenter Phase II clinical experience with the novel aza-epothilone Ixabepilone (BMS247550) in patients with relapsed or refractory indolent non-Hodgkin lymphoma and mantle cell lymphoma  ::READ MORE:: 

Therapy insight: management of cardiovascular disease in patients with cancer and cardiac complications of cancer therapy  ::READ MORE::

Lenalidomide and rituximab in Waldenstrom macroglobulinemia  ::READ MORE:: 

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Clinical Trials
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Selected Trials 

Phase III: Chemotherapy with or without Additional Chemotherapy and/or Radiation Therapy in Treating Children with Newly Diagnosed Hodgkin Lymphoma  ::READ MORE::  

Phase II: Combination Therapy Using Lenalidomide (Revlimid®), Low Dose Dexamethasone and Rituximab for Treatment of Rituximab-Resistant, Non-Aggressive B-Cell Lymphomas  ::READ MORE:: 

Phase II: LMB-2 Immunotoxin, Fludarabine and Cyclophosphamide in Treating Patients with T-Cell Leukemia  ::READ MORE:: 

Phase I Study of Pralatrexate in Patients with Relapsed or Refractory Cutaneous T-Cell Lymphoma  ::READ MORE:: 

Phase III: Rituximab and Combination Chemotherapy in Treating Patients with Diffuse Large B-Cell Non-Hodgkin Lymphoma  ::READ MORE:: 

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IRC Question of the Month
Q&A

Q: My health plan does not cover some of the drugs and tests my physician ordered to treat my lymphoma. What can I do? 

A: If your health plan denies a claim for treatment that your physician thinks is medically necessary there are a number of things you can do.

  • Submit claims for all medical expenses even if you are not sure they are covered. Submit your bills as you receive them.
  • Contact your health plan and request a copy of your plan's coverage and appeal process in writing. When you make the call, get the name of the person you speak to and take the opportunity to establish an ongoing contact with a case manager with whom you can discuss any future issues that may arise. 
  • Start and maintain a file of all claims, claims-related documents and letters. In your file, keep a log of all calls related to your health claims reimbursement. Include the name of the person you spoke to and the dates of all telephone calls you make or receive. 
  • If you have submitted a claim that was denied, re-submit the claim with a copy of your denial letter. Ask your physician to write a statement explaining the treatment or services, the reason this treatment is medically necessary for you and how you will benefit. Your physician can also submit relevant peer-reviewed medical journal articles to document that the treatment is effective and necessary for your care.

These steps may resolve the claim. If not, you can submit the claim again and request a peer review. This provides the opportunity for your physician to discuss the treatment in detail with other physicians in the medical specialty. In the meantime, get help from your physician's office, your clinic or hospital to arrange to delay payment until your claim is resolved.

You can request help from the consumer services division of your state insurance department or commission and/or consider legal action if the claim is still not resolved.

Here are more resources to help you: 

  • LLS encourages you to contact our Information Resource Center at (800) 955-4572 or email us with any additional questions. 

  • LLS also provides supplementary financial assistance to patients in financial need. We offer $500 per year toward treatment-related expenses not covered by insurance (including tests, blood transfusions, chemotherapy, drugs, radiation therapy) and transportation to and from treatment. For more information about the Patient Financial Aid Program, click here.

  • Listen to the audio program Practical Tips for Managing Your Financial & Insurance Issues.

  • Order the free booklet Financial Health Matters and click here  for a printable guide of questions to ask about denial of coverage.

  • The Medicare Rights Center can help people to  navigate the Medicare system. Counselors at (800) 333-4114 answer questions about insurance options, Medicare rights and protections, payment denials, appeals, complaints about care or treatment and Medicare bills.

  • The Patient Advocate Foundation (PAF) provides free services to help with Medicaid, disability, managed care, health insurance, medical debt and employment discrimination issues. PAF offers free legal assistance, in accordance with their guidelines, to help people obtain benefits from their insurance companies. You can contact PAF at (800) 532-5274.

  • Finally, the Cancer Legal Resource Center provides free information and resources about cancer-related legal issues. The Center has a free telephone assistance line at (866) 843-2572.

As always the IRC is here to help. To speak with an IRC specialist, Monday through Friday, 9 a.m. to 6 p.m. ET, please call (800) 955-4572, or visit www.LLS.org.

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Supported by an unrestricted
educational grant from
Cephalon Oncology
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Contact Us: The Leukemia & Lymphoma Society, 1311 Mamaroneck Ave., White Plains, NY 10605, (800) 955-4572
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