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Welcome
to LymphomaLinks,
your monthly source of lymphoma news, research
updates, clinical trials and events sponsored by
The Leukemia & Lymphoma Society (LLS). For
even more information, regularly visit
LLS's Patient
Services and Disease
Information Web
sections. | |
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Latest Lymphoma
News
Rheumatoid
Arthritis and Lymphoma: What's the
Link?
Rheumatoid arthritis is a type of
autoimmune disorder. With RA, the immune system
attacks the body's own tissues, leading to
chronic inflammation. An autoimmune disorder
also leaves a person vulnerable to infections as
well as a host of other medical
conditions. ::READ MORE
NEWS::
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LLS
Features
::READ
MORE::
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Research
Roundup
::READ
MORE::
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IRC Question of
the Month
:: READ
MORE::
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Inspirational
Stories
 Learn how individuals touched
by blood cancer cope. LLS's LifeMosaic Web feature offers
hundreds of inspiring stories by patients and families. Read
them or submit your own. This
month, meet Susan. |
Here to
Help
For
even more information, regularly visit the LLS
Web site,
www.LLS.org
,
where many of our education programs are
archived free of charge for convenient access
24/7.
If you haven't found what you're
looking for in LymphomaLinks , please
call our Information Resource Center (IRC) to
speak with trained information specialists. IRC
staff are available Monday through Friday, 9
a.m. to 6 p.m. ET, toll free at (800) 955-4572;
email
infocenter@lls.org
;
or click the "Live Patient Help" button on
the www.LLS.org
homepage.
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Clinical
Trials
We
invite you to use
our LLS-supported TrialCheck®
Web site, a clinical trial search service
that offers patients and caregivers immediate
access to listings of
all lymphoma clinical trials. Answer
just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy to read list of search
results.
You may also want to visit the
National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on phase III cancer treatment trials
supported by the National Cancer
Institute
. ::SELECTED TRIALS::
Newsfeeds &
Podcasts
Now you can get
RSS Feeds and Podcasts from LLS.
::CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
:: CLICK HERE TO SIGN
UP::
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My
Personal Lymphoma Journey
This unique
interactive Web program follows the stories and
experiences of lymphoma survivors, including a
new story of a follicular lymphoma survivor. The
guest physician is John P. Leonard, MD, of Weill
Medical College of Cornell University/New
York-Presbyterian Hospital, New York, NY. We
hope this program helps you to learn more about
the lymphoma journey, and resources that are
available to you and other lymphoma
survivors.
My
Clinical Trials Journey
This personalized
and interactive program follows the stories and
experiences of three cancer survivors who have
participated in clinical trials, including a
lymphoma survivor. Their stories of hope and
determination are compelling. Ann Pirro,
Physician's Assistant at Queens Medical Center,
Fresh Meadows, NY, provides expert insights
along the
way.
LLS
Advocacy
LLS's
advocacy team represents the needs of cancer
patients and their families in Washington,
DC and state capitals throughout the United
States. We need your help. Join our
Advocates Network and make your voice heard.
TAKE
ACTION: Urge Your Representative to Support
Increased Cancer Research Funding - Tell
your elected officials that to win the war on
cancer, they need to fund the war on
cancer!
Patient
Services Survey
Please give us your
feedback by completing LLS Disease &
Treatment Publications - Survey for Patients,
Family and Friends.
LLS Blog
Learn the many ways you can help advance the
LLS mission, including making a donation.
Find
out more about our other
eNewsletters.
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Outcome of Deferred Initial Therapy in
Mantle-Cell Lymphoma ::READ
MORE::
Fluorine-18-Fluorodeoxyglucose Positron
Emission Tomography for Interim Response
Assessment of Advanced-Stage Hodgkin's Lymphoma
and Diffuse Large B-Cell Lymphoma: A Systematic
Review ::READ
MORE::
A phase II trial of single agent bevacizumab
in patients with relapsed, aggressive
non-Hodgkin lymphoma: Southwest oncology group
study S0108. ::READ
MORE::
Patients with chemotherapy-refractory mantle
cell lymphoma experience high response rates and
identical progression-free survivals compared
with patients with relapsed disease following
treatment with single agent bortezomib: results
of a multicentre Phase II clinical
trial. ::READ
MORE::
Maintenance rituximab after cyclophosphamide,
vincristine, and prednisone prolongs
progression-free survival in advanced indolent
lymphoma: results of the randomized phase III
ECOG1496 Study. ::READ
MORE::
>Back to the
top
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Selected
Trials
Phase II: Bendamustine Combined With
Rituximab for Patients With Relapsed or
Refractory Diffuse Large B-Cell Lymphoma
::READ
MORE::
A Phase II Multi-Center Study of
Entinostat (SNDX-275) in Patient With Relapsed
or Refractory Hodgkin's Lymphoma ::READ
MORE::
A Phase II Open Label Trial of SGN-35
for Systemic Anaplastic Large Cell
Lymphoma ::READ
MORE::
Phase II: Bortezomib and Combination
Chemotherapy in Treating Young Patients With
Relapsed Acute Lymphoblastic Leukemia or Acute
Lymphoblastic Lymphoma ::READ
MORE::
SCH 727965 in Patients With Mantle Cell
Lymphoma or B-Cell Chronic Lymphocytic Leukemia
::READ
MORE::
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| IRC
Question of
the Month | 
Q: I have
gotten a side effect from chemotherapy called
peripheral neuropathy, are there any treatments
for this condition, as it affects my daily
life?
A:
Peripheral neuropathy (PN) is the term
for damage to nerves of the peripheral nervous
system, which transmits information from the
brain and spinal cord to other parts of the
body. PN is estimated to affect 10 to 20 percent
of people with cancer and can be caused by
certain chemotherapeutic agents, such as
vincristine (Oncovin®), bortezomib (Velcade®),
thalidomide (Thalomid®), lenalidomide
(Revlimid®), cytarabine (Cytosar-U®), interferon
(multiple brand names) or methotrexate (multiple
brand names). Radiation therapy may cause nerve
injury, although it may take several years for
symptoms to appear. Shingles, a rash that may
develop in people with weakened immune systems,
may also result in neuropathy. PN may also be a
symptom of certain diseases, such as myeloma.
Some causes of PN are not
associated with cancer. PN may be inherited or
it can be a symptom of certain diseases or
conditions. It is important to let your doctor
know if you already have symptoms of neuropathy
before starting treatment, or if you have any of
the conditions that are associated with PN,
including diabetes, nerve compression caused by
vertebral fractures or vitamin deficiencies,
particularly folate or vitamin B12,
autoimmune diseases, such as lupus and
rheumatoid arthritis, hypothyroidism or kidney
disease.
While a person is undergoing
cancer treatment, his or her doctor may give
prescribe certain medications and/or vitamins to
help prevent neuropathy. Be sure to talk with
your doctor before starting any over-the-counter
medications, vitamins, or supplements on your
own. Patients should seek medical advice as soon
as possible if they experience numbness,
tingling, burning, coldness or weakness in the
arms or legs. These may be symptoms of PN.
With medical advice, patients
who develop PN as a result of chemotherapy may
be helped by taking a reduced dosage of the
prescribed drugs or stopping the drugs
completely. Treatment-caused PN may gradually
decrease after treatment is completed. In some
cases, the symptoms may persist. Other
therapies for PN depend on its cause and related
symptoms. Many people recover fully from the
disorder over time, whether it is in a few
months or a few years. Sometimes, the condition
may be more difficult to cure and may require
long-term management. Your doctor will work to
diagnose and eliminate the cause of your
neuropathy and manage symptoms.
These safety tips from the
American Society of Clinical Oncology at
Cancer.Net may help
people with PN who have sensory or motor
difficulties to avoid injury at home:
- Keep all rooms, hallways, and
stairways well lit.
- Install handrails on both sides
of stairways.
- Remove small area rugs and any
other clutter that you could trip over or slip
on.
- Install grab bars in the shower
or handgrips in the tub, and lay down skid-free
mats.
- Use a thermometer to check that
any water you bathe in or use is below 110
degrees Fahrenheit, or set your water heater
accordingly.
- Clean up any spilled water or
liquids immediately.
- Use non-breakable dishes.
- Use potholders while cooking
and rubber gloves when washing dishes.
- If you drive, make sure you can
fully feel the gas and brake pedals, and the
steering wheel, and that you can quickly move
your foot from the gas to the brake.
- If prescribed, use a cane or
walker when moving from one room to the other.
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact us
online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
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Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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