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Welcome
to LymphomaLinks,
your monthly source of lymphoma news, research
updates, clinical trials and events sponsored by
The Leukemia & Lymphoma Society (LLS). For
even more information, regularly visit
LLS's Patient
Services and Disease
Information Web
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LLS
Features
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Research
Roundup
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IRC Question of
the Month
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MORE::
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Inspirational
Stories
 Learn how individuals touched
by blood cancer cope. LLS's LifeMosaic Web feature offers
hundreds of inspiring stories by patients and families. Read
them or submit your own. This
month, meet Jan. |
Here to
Help
For
even more information, regularly visit the LLS
Web site,
www.LLS.org
,
where many of our education programs are
archived free of charge for convenient access
24/7.
If you haven't found what you're
looking for in LymphomaLinks , please
call our Information Resource Center (IRC) to
speak with trained information specialists. IRC
staff are available Monday through Friday, 9
a.m. to 6 p.m. ET, toll free at (800) 955-4572;
email
infocenter@lls.org
;
or click the "Live Patient Help" button on
the www.LLS.org
homepage.
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Commentary
Deborah Banker, Ph.D., reports
on promising new research that
was presented at the recent prestigious
American Society of Clinical Oncology
meeting.
Clinical
Trials
We
invite you to use
our LLS-supported TrialCheck®
Web site, a clinical trial search service
that offers patients and caregivers immediate
access to listings of
all lymphoma clinical trials. Answer
just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy to read list of search
results.
You may also want to visit the
National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on phase III cancer treatment trials
supported by the National Cancer
Institute
. ::SELECTED TRIALS::
Newsfeeds &
Podcasts
Now you can get
RSS Feeds and Podcasts from LLS.
::CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
:: CLICK HERE TO SIGN
UP::
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Emerging
Therapies in Leukemia, Lymphoma & Myeloma
Register now for this free telephone
education program on Tuesday, June 16, noon -
1:30 p.m. ET. The guest speakers are Gail J.
Roboz, MD and John P. Leonard, MD both from
Weill Medical College of Cornell University/New
York-Presbyterian Hospital, New York, NY and
Robert Z. Orlowski, MD, PhD from The University
of Texas, MD Anderson Cancer Center, Houston,
TX.
Update
on Mantle Cell Lymphoma
Register now for
this free telephone education program on
Thursday, June 18, noon - 1:30 p.m. ET. The
guest speaker is Owen A. O'Connor, MD, PhD from
the Herbert Irving Comprehensive Cancer Center,
New York-Presbyterian Hospital, Columbia
University, New York, NY.
NHL:
Understanding Diagnosis and Making Treatment
Decisions
Register now for this free
telephone education program on Wednesday, June
24, noon - 1:30 p.m. ET. The guest speaker is
Steven H. Bernstein, MD from the James P. Wilmot
Cancer Center, University of Rochester Medical
Center, Rochester, NY.
My
Personal Lymphoma Journey
This unique
interactive Web program follows the stories and
experiences of lymphoma survivors, including a
new story of a follicular lymphoma survivor. The
guest physician is John P. Leonard, MD, of Weill
Medical College of Cornell University/New
York-Presbyterian Hospital, New York, NY. We
hope this program helps you to learn more about
the lymphoma journey, and resources that are
available to you and other lymphoma
survivors.
My
Clinical Trials Journey
This personalized
and interactive program follows the stories and
experiences of three cancer survivors who have
participated in clinical trials, including a
lymphoma survivor. Their stories of hope and
determination are compelling. Ann Pirro,
Physician's Assistant at Queens Medical Center,
Fresh Meadows, NY, provides expert insights
along the way.
Clinical Trial Recruitment -- LLS,
through its Therapy Accelerator Program,
is collaborating on several clinical
trials that are actively recruiting.
Two of these trials are designed for Lymphoma
patients (recruiting in Cleveland, Ohio in the
States and Calgary and Toronto in Canada).
For more information about these trials, see the
Therapy
Accelerator Program section of lls.org.
LLS
Advocacy
LLS's
advocacy team represents the needs of cancer
patients and their families in Washington,
DC and state capitals throughout the United
States. We need your help. Join our
Advocates Network and make your voice heard.
ACT NOW! Urge
Congress to Co-Sponsor Access to Cancer Clinical
Trials Legislation
Patient
Services Survey
Please give us your
feedback by completing LLS Disease &
Treatment Publications - Survey for Patients,
Family and Friends.
LLS Blog
Learn the many ways you can help advance the
LLS mission, including making a donation.
Find
out more about our other
eNewsletters.
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Bortezomib in patients with relapsed or
refractory mantle cell lymphoma: updated
time-to-event analyses of the multicenter phase
2 PINNACLE study ::READ
MORE::
Angiogenesis and antiangiogenic therapy in
non-Hodgkin's lymphoma ::READ
MORE::
Phase II Study of Weekly Gemcitabine and
Vinorelbine for Children With Recurrent or
Refractory Hodgkin's Disease: A Children's
Oncology Group Report ::READ
MORE::
Anthracycline-fludarabine-containing regimens
with or without rituximab in the treatment of
patients with advanced follicular lymphoma
::READ
MORE::
Follicular Lymphoma in the United States:
First Report of the National LymphoCare
Study ::READ
MORE::
Response assessment after an inductive CHOP
or CHOP-like regimen with or without rituximab
in 103 patients with diffuse large B-cell
lymphoma: integrating 18fluorodeoxyglucose
positron emission tomography to the
International Workshop Criteria ::READ
MORE::
>Back to the
top
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Selected
Trials
Phase I/II Study of the Novel Proteasome
Inhibitor Bortezomib in Combination with
Rituxamib, Cyclophosphamide and Prednisone in
Patients with Relapsed/Refractory Indolent
B-Cell Lymphoproliferative Disorders and Mantle
Cell Lymphoma (MCL) ::READ
MORE::
Phase II: Bendamustine Combined with
Rituximab for Patients with Relapsed or
Refractory Diffuse Large B-Cell Lymphoma ::READ
MORE::
Rituximab, Chemotherapy, and Filgrastim in
Treating Patients with Burkitt's Lymphoma or
Burkitt's Leukemia ::READ
MORE::
Phase III: Rituximab and Combination
Chemotherapy in Treating Patients with Diffuse
Large B-Cell Non-Hodgkin's Lymphoma ::READ
MORE::
A Phase 1-2, Multicenter, Open-Label Study of
AEG35156 in Patients with Relapsed or Refractory
Chronic Lymphocytic Leukemia and Indolent B-Cell
Lymphomas ::READ
MORE::
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Question of
the Month | 
Q: I have just started
chemotherapy, and I enjoy going to the beach in
the summer. Are there any precautions I should
take?
A: Everyone should reduce
their exposure to the harmful effects of the
sun's ultraviolet (UV) rays because of the risk
of skin cancers. In addition, patients with
lymphoma should avoid all direct sun exposure
after completing certain drug and/or radiation
therapy. Treatment often makes the skin more
sensitive to the effects of the sun.
Skin-related side effects of treatment may
include dryness, redness, itchiness or lesions.
These may occur during and after drug or
radiation therapy. Patients should check with
their treatment teams about specific sun-related
effects of their therapy. They may be related to
treatment, to the disease itself or to
complications such as infection. If you're
preparing a vacation that may include sun
exposure it is best to get a medical guidance
about appropriate precautions, including topical
solutions (creams, lotions or gel) to protect,
soothe, soften or moisturize skin or to prevent
itching.
Plan outdoor activities for early morning or
late afternoon. Seek natural shade from trees or
other shelter. UV rays are reflected by sand,
water and snow; so take extra care when on a
beach, boating or skiing holiday. Use a
sunscreen with a sun protective factor (SPF) of
15 or higher in general and choose one that
protects against all of the sun's rays. Wear an
SPF 30 sunscreen on any areas directly affected
by treatment with radiation. Sunscreen must be
reapplied after swimming or sweating.
If you lose your hair because of therapy,
protect your head from sun exposure and
irritation by wearing soft hats or scarves.
Wearing a wide-brimmed hat, long-sleeved shirts
and trousers when in the sun is also suggested.
Try to avoid lightly woven fabrics as they may
allow rays through. New clothing lines have been
developed to protect against UV
rays.
Please call
our Information Resource Center (IRC) to speak
with a trained information specialist. IRC staff
are available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact us
online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
> Back to the
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Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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