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Welcome
to LymphomaLinks,
your monthly source of lymphoma news, research
updates, clinical trials and events sponsored by
The Leukemia & Lymphoma Society (LLS). For
even more information, regularly visit
LLS's Patient
Services and Disease
Information Web
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LLS
Features
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MORE::
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Research
Roundup
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MORE::
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IRC Question of
the Month
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MORE::
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Inspirational
Stories
 Learn how individuals touched
by blood cancer cope. LLS's LifeMosaic Web feature offers
hundreds of inspiring stories by patients and families. Read
them or submit your own. This
month, meet the Rev.
Stephen Thomas De
Mott. |
Here to
Help
For
even more information, regularly visit the LLS
Web site,
www.LLS.org
,
where many of our education programs are
archived free of charge for convenient access
24/7.
If you haven't found what you're
looking for in LymphomaLinks , please
call our Information Resource Center (IRC) to
speak with trained information specialists. IRC
staff are available Monday through Friday, 9
a.m. to 6 p.m. ET, toll free at (800) 955-4572;
email
infocenter@lls.org
;
or click the "Live Patient Help" button on the
www.LLS.org homepage.
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Commentary
Deborah Banker, Ph.D., shares more
news on cancer stem
cells.
Clinical
Trials
We
invite you to use
our LLS-supported TrialCheck®
Web site, a clinical trial search service
that offers patients and caregivers immediate
access to listings of
all lymphoma clinical trials. Answer
just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy to read list of search
results.
You may also want to visit the
National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on phase III cancer treatment trials
supported by the National Cancer
Institute
. ::SELECTED TRIALS::
Newsfeeds &
Podcasts
Now you can get
RSS Feeds and Podcasts from LLS.
::CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
:: CLICK HERE TO SIGN
UP::
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My
Personal Lymphoma Journey
This unique
interactive Web feature follows the stories and
experiences of lymphoma survivors. The guest
physician is John Leonard, M.D., of Weill
Cornell Medical College. We hope this program
helps you to learn more about the lymphoma
journey, and resources that are available to you
and other lymphoma
survivors.
LLS Advocacy
LLS's advocacy team represents the needs
of cancer patients and their families in
Washington, DC and state capitals
throughout the United States. We need
your help. Join our Advocates
Network and make your voice heard.
Take Action: Urge
Your Representative to Join the Pediatric Cancer
Caucus
Find
out about updates to COBRA covered by the
Recovery Act signed into law on Feb.
17.
Patient
Services Survey
Please give us your
feedback by completing LLS Disease &
Treatment Publications - Survey for Patients,
Family and Friends.
LLS Blog
Two New Promotions
Support LLS's Mission
- Gap Inc's nationwide Give &
Get Program (March 12-15, 2009) will
benefit you with a special 30-percent
discount coupon good at all Gap, Old Navy and
Banana Republic stores. Five percent of all
net sales go to LLS. Click
here for details.
- You can now have an LLS- or
TNT-branded VISA credit card, personalized
with any image you choose. LLS will receive
$50 for each card used plus a percentage of all
purchases. There's still time to receive your
card and use it with the Gap Give & Get
Program. Click
here for
details.
Learn the many ways you can help advance the
LLS mission, including making a donation.
Find
out more about our other
eNewsletters.
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High-dose therapy and
autologous stem cell transplantation for
follicular lymphoma undergoing transformation to
diffuse large B-cell lymphoma ::READ MORE::
Response to low-dose
involved-field radiotherapy in patients with
non-Hodgkin lymphoma
::READ MORE::
Autologous stem-cell
transplantation as first-line therapy in
peripheral T-cell lymphomas: results of a
prospective multicenter study ::READ MORE::
Ifosfamide or
trofosfamide in patients with intraocular
lymphoma ::READ MORE::
A study of rituximab and
ifosfamide, carboplatin and etoposide
chemotherapy in children with
recurrent/refractory B-cell (CD20+) non-Hodgkin
lymphoma and mature B-cell acute lymphoblastic
leukemia: a report from the Children's Oncology
Group ::READ MORE::
Tyrosine kinase
inhibition in diffuse large B-cell lymphoma:
molecular basis for antitumor activity and drug
resistance of dasatinib ::READ MORE::
>Back to the
top
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Selected
Trials
Internet-Based Program with or
without Telephone-Based Problem-Solving Training
in Helping Long-Term Survivors of Stem Cell
Transplant Cope with Late Complications
::READ MORE::
A Pivotal Open-Label Phase II
Trial of SGN-35 for Hodgkin Lymphoma ::READ MORE::
Phase II Study of Oral
Panobinostat in Adult Patients with
Relapsed/Refractory Classical Hodgkin
Lymphoma ::READ MORE::
Ondansetron in Preventing Nausea
and Vomiting in Patients Undergoing a Stem Cell
Transplant ::READ MORE::
Bortezomib in Treating Patients
with Relapsed or Refractory Cutaneous T-Cell
Lymphoma ::READ MORE::
A Phase II Study of
Velcade® (Bortezomib) in
Combination with Bendamustine and Rituximab in
Subjects with Relapsed or Refractory Follicular
Lymphoma ::READ MORE::
A Phase III Study of Galiximab +
Rituximab Versus Rituximab + Placebo in
Follicular Non-Hodgkin Lymphoma ::READ MORE::
Phase II/III: Efficacy and
Safety Study of StemEx® to Treat
Subjects with High Risk Hematologic
Malignancies, Following Myeloablative
Therapy ::READ MORE::
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Question of
the Month | 
Q: I am starting
chemotherapy for lymphoma and I know
that painful mouth sores can be a side effect.
Is there anything to prevent or treat this?
A: It's great that you're
seeking side effects information before starting
treatment. Most cancer therapies do affect
healthy cells, but side effects can be managed
and are usually temporary. Side effects vary,
depending on your treatment - discuss the side
effects you may experience with your doctor.
Together, you can weigh any unwanted effects
against the benefits of therapy. Once treatment
begins, don't delay to tell your doctor about
any side effects you experience and seek help to
manage them - don't "tough it
out."
Cells that line the mouth, throat, esophagus,
stomach and intestines are sensitive to the
effects of chemotherapy and/or radiation
therapy. Painful mouth and throat sores called
"oral mucositis" can develop as a result of
treatment with high-dose chemotherapy and or
radiation. Treatment for this side effect is
important - to relieve the discomfort or pain it
can cause; to ensure that it doesn't interfere
with nutrition or oral medication needs; and to
manage the risk of infection.
Drug, mouth care and nutrition approaches are
used to prevent or limit the severity of oral
mucositis. For some people, treatment includes
the drug palifermin (Kepivance®).
Palifermin is given intravenously and stimulates
the cells lining the mouth and other parts of
the digestive tract to grow and develop. Other
topical and intravenous agents, are being
evaluated for their ability to prevent or treat
mucositis.
Mouth care includes use of mouth rinses
recommend by the doctor. It's important to avoid
mouth washes that contain peroxide or alcohol.
Oral mucositis and other side effects of
treatment make it a challenge to take in enough
calories and protein. Nutrition management is
important because both cancer and its treatments
increase the body's need for calories and
protein.
Nutrition strategies include:
- Request pain medication if discomfort is
keeping you from eating; soothe your mouth and
throat with ice chips (suck, don't chew),
Popsicles, ice cream or frozen yogurt.
- Cook foods until soft or prepare foods in a
blender or food processor.
- Eat high-protein, high-calorie foods to
speed healing of the sores or supplement with
liquid protein drinks recommended by your
doctor; try creamed soups, mashed potatoes,
puddings, cooked cereals, served lukewarm or
cold.
- Serve drinks lukewarm or cold and use a
straw to bypass mouth sores. Ask you doctor for
a complete list of foods and drinks to
avoid.
Occasionally, oral mucositis is severe enough
to warrant a period of prescribed high-calorie
and high-protein supplements with tube or
intravenous (IV) feeding until eating and
drinking can resume. These forms of therapy may
be used to keep patients as healthy and strong
as possible during treatment.
For more information, see Understanding
Drug Therapy and Managing Side
Effects and Food
and Nutrition Facts. Also, see
Treatment at www.LLS.org/whattoask for
free printable question guides to help you talk
to your doctor about side effects and other
aspects of
treatment.
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact us
online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
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unrestricted
educational grant
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Contact Us: The
Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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