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Welcome
to LymphomaLinks,
your monthly source of lymphoma news, research
updates, clinical trials and events sponsored by
The Leukemia & Lymphoma Society (LLS). For
even more information, regularly visit
LLS's Patient
Services and Disease
Information Web
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LLS
Features
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MORE::
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Research
Roundup
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MORE::
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IRC Question of
the Month
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MORE::
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Inspirational
Stories
 Learn how individuals touched
by blood cancer cope. LLS's LifeMosaic Web feature offers
hundreds of inspiring stories by patients and families. Read
them or submit your own. This
month, meet Melinda. |
Here to
Help
For
even more information, regularly visit the LLS
Web site,
www.LLS.org
,
where many of our education programs are
archived free of charge for convenient access
24/7.
If you haven't found what you're
looking for in LymphomaLinks , please
call our Information Resource Center (IRC) to
speak with an information specialists. IRC
staff are available Monday through Friday, 9
a.m. to 6 p.m. ET, toll free at (800) 955-4572;
email
infocenter@lls.org
;
or click the "Live Patient Help" button on
the www.LLS.org
homepage.
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Commentary
Deborah Banker, Ph.D., shares exciting advances in stem
cell transplantation.
Clinical
Trials
We
invite you to use
our LLS-supported TrialCheck®
Web site, a clinical trial search service
that offers patients and caregivers immediate
access to listings of
all lymphoma clinical trials. Answer
just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy to read list of search
results.
:: SEE
CLINICAL TRIALS::
You may also want to visit the
National Cancer Institute's Cancer
Trials Support Unit, providing resources and
information on phase III cancer treatment trials
supported by the National Cancer
Institute
.
Newsfeeds &
Podcasts
Now you can get
RSS Feeds and Podcasts from LLS.
:: CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
:: CLICK HERE TO SIGN
UP::
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NHL:
Treatment Advances from the American Society of
Hematology (ASH) Annual Meeting
Register
now for this free telephone education program.
This program will take place on Thursday,
December 17, 2009 from 12-1:30 pm ET and the
featured speaker is Jonathan W. Friedberg, MD,
MMSc, Assistant Professor of Medicine ,
Chief, Hematology/Oncology Division,
Director, Hematological Malignancies
Clinical Research, Wilmot Cancer Center,
University of Rochester, Rochester, NY.
Participants will have the opportunity to ask
the presenter questions during the program.
LLS
Live Online Chat
The Leukemia &
Lymphoma Society (LLS) live online chat forums
bring together patients with non-Hodgkin
Lymphoma offering the opportunity to share
experiences about issues related to living with
NHL and provide mutual support. Each chat
forum takes place weekly during a 2-hour session
and is moderated by an oncology social worker
specializing in blood cancers.
Online
Support Groups
The Leukemia &
Lymphoma Society's (LLS) new Online Support
Groups, in partnership with The Wellness
Community are password protected weekly groups
led by trained professionals for adults living
with leukemia, lymphoma, myeloma and
myelodysplastic syndromes and their caregivers.
Through these groups, we invite you to receive
and share support, feedback and information with
other people living with blood cancers and their
loved
ones.
LLS
Advocacy
LLS's
advocacy team represents the needs of cancer
patients and their families in Washington,
DC and state capitals throughout the United
States. We need your help. Join our
Advocates Network and make your voice heard.
ACT
NOW! Urge Congress to Co-Sponsor Access to
Cancer Clinical Trials
Legislation
We'd Like to Hear from
You!
Please give us your feedback
after you read an LLS Publication by completing
our evaluation:
LLS
Disease & Treatment Publications - Survey
for Patients, Family and Friends
Nos gustaría saber sus
opiniones
Por favor denos sus
comentarios después de leer una publicación de
LLS completando nuestra evaluación:
Publicaciones
de LLS sobre enfermedades y tratamiento:
Encuesta para pacientes, familiares y
amigos
LLS
Blog
Learn the many ways you can help advance the
LLS mission, including making a donation.
Find
out more about our other
eNewsletters.
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Allogeneic Stem Cell Transplantation Is Able
to Induce Long-Term Remissions in
Angioimmunoblastic T-Cell Lymphoma: A
Retrospective Study from the Lymphoma Working
Party of the European Group for Blood and Marrow
Transplantation ::READ
MORE::
Escalated-Dose BEACOPP in the Treatment of
Patients with Advanced-Stage Hodgkin's Lymphoma:
10 Years of Follow-Up of the GHSG HD9 Study
::READ
MORE::
Regulation of JAK2 by miR-135a: prognostic
impact in classical Hodgkin lymphoma ::READ
MORE::
Dose-dense and high-dose chemotherapy plus
rituximab with autologous stem cell
transplantation for primary treatment of diffuse
large B-cell lymphoma with a poor prognosis: a
phase II multicenter study. ::READ
MORE::
Phase II study of a TLR-9 agonist (1018 ISS)
with rituximab in patients with relapsed or
refractory follicular lymphoma. ::READ
MORE::
Phase III study to evaluate temsirolimus
compared with investigator's choice therapy for
the treatment of relapsed or refractory mantle
cell lymphoma. ::READ
MORE::
>Back to the
top
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Phase II Study of Bortezomib in
Combination with Cyclophosphamide and Rituximab
for Relapsed/Refractory Mantle Cell Lymphoma
::READ
MORE::
Quality of Life in Younger Leukemia and
Lymphoma Survivors ::READ
MORE::
Phase II: Vorinostat in Patients with Primary
Cutaneous T-Cell Lymphoma ::READ
MORE::
A Phase 1-2, Multicenter, Open-Label Study of
AEG35156 in Patients with Relapsed or Refractory
Chronic Lymphocytic Leukemia and Indolent B-Cell
Lymphomas ::READ
MORE::
Phase III Study of RAD001 Adjuvant Therapy in
Poor Risk Patients with Diffuse Large B-Cell
Lymphoma (DLBCL) of RAD001 Versus Matching
Placebo After Patients Have Achieved Complete
Response With First-line Rituximab-chemotherapy
(PILLAR-2) ::READ
MORE::
PRELUDE: Phase III Study to Investigate the
Prevention of Relapse in Lymphoma Using Daily
Enzastaurin ::READ
MORE::
>Back to the
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Question of
the Month | 
Q: How can I be an
active participant in my care?
A: You can play a vital role
in your wellbeing by being involved in your own
care. Participating can help you understand how
your disease is being managed, make informed
decisions and feel more in control of your life.
5 Important Steps for Participating
in Your Healthcare
1. Learn all you can about
your diagnosis.
- Know your specific disease type, stage of
disease and what all of your potential treatment
options are, including treatments in clinical
trials.
2. Get the most from your
meetings with your doctor and other members of
your healthcare team.
- Prepare ahead of your medical appointments.
Bring a list of questions and concerns with you.
Maintain a list in between appointments so you
can record questions and concerns as they arise.
Be assertive. Ask questions until you receive a
complete explanation. If your doctor provides
information that is too technical or limited in
scope, ask that he/she provide you with
information that is more patient-friendly. Take
notes or tape record the session so you can
easily recall and review the responses at a
later time. If possible, bring someone with you
to appointments to take notes and be a second
"pair of ears."
3. Follow medical advice.
- Keep all medical appointments. Take at-home
medications as instructed. Following
instructions for preventing infections. Maintain
healthy diet, exercise and sleep habits.
4. Keep a file with copies
of your medical records and other diagnostic and
treatment information.
- Keep copies of your medical history, your
test results and the medications used to treat
you. Include you started and stopped
medications, any side effects, a list of
medications you take for other health reasons,
such as blood pressure medication. Keeping
copies and/or recording key information will
enable you to refer it for discussions with
members of your healthcare team.
5. Seek support and network
with other people who have your diagnosis.
- This is an excellent way to learn more about
the disease, what to expect from treatment,
share common concerns and gain support.
To help you advocate for yourself,
LLS offers you
- Educational materials that provide this
helpful information regarding blood cancers. Click
here for free Disease, Treatment and Support
booklets and fact sheet.
- A
clinical trial service using an easy search tool
and/or our Information Specialists. In fact,
if you have any questions about leukemia,
lymphoma or myeloma give our information
specialists a call at 1-800-955-4572 or contact
us online. We're available Monday through
Friday from 9 a.m. to 6 p.m. ET.
- Free live telephone and Web-based education
programs that feature disease experts who
present information about the latest on disease
research and treatment. If you are unable to
take part the day of the program, an audio and
written transcript on saved our Web site. Click
here for more information. To be notified by
email of our upcoming programs you may register,
for email alerts, on our homepage ( www.LLS.org).
- Support services all over the United States
and Canada to meet the needs of patients,
caregivers and families. Please contact your
local chapter office to learn more and become
active. To identify your local chapter, input
your Zip or Postal Code in the Chapter Finder
tool on our homepage (www.LLS.org).
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact us
online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
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unrestricted
educational grant
from
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Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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