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  MyelomaLinks - Your Link to the Latest Myeloma News  


JUNE 2009 800.955.4572 Email the IRC Forward to a Friend
 

Welcome to MyelomaLinks, your monthly source of myeloma news, research updates, clinical trials and events of The Leukemia & Lymphoma Society (LLS). For even more information, regularly visit our Patient Services and Disease Information Web sections.

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Latest Myeloma News

Ginger Provides Significant Reduction of Chemotherapy-induced Nausea
A large, randomized clinical trial has shown a significant reduction of chemotherapy-related nausea for patients taking ginger supplements along with standard antiemetic drugs, offering relief during the first day after chemotherapy for the more than 73% of patients with cancer treated with chemotherapy who suffer from this side effect
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LLS Features    ::READ MORE::
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Research Roundup
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IRC Question of the Month  
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Inspirational Stories

Inspirational ImageLearn how individuals touched by blood cancer cope. LLS's LifeMosaic Web feature offers hundreds of inspiring stories by patients and families. Read them or submit your own.

Here to Help

Visit the LLS Web site www.LLS.org regularly for even more information. Many of our education programs are archived free of charge for convenient access 24/7.

If you haven't found what you're looking for in MyelomaLinks , please call our Information Resource Center (IRC) to speak with trained information specialists. IRC staff are available Monday through Friday, 9 a.m. to 6 p.m. ET, toll free at (800) 955-4572; email
infocenter@lls.org; or click the "Live Patient Help" button on the www.LLS.org homepage.

Please consider a tax-deductible gift to LLS. Donate online today and help us make a difference in the lives of patients and their families.

Help for Patients with a Difficult Blood Cancer
The Leukemia & Lymphoma Society offers Co-Pay Assistance for Myeloma Patients.
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Commentary
Deborah Banker, Ph.D., reports on promising new research that was presented at the recent prestigious American Society of Clinical Oncology meeting.

Clinical Trials
We invite you to use our LLS-supported TrialCheck® Web site , a clinical trial search service that offers patients and caregivers immediate access to listings of all myeloma clinical trials. Answer just a few simple questions and a list of available clinical trials related to your cancer will appear in an easy-to-read list of search results. 

You may also want to visit the National Cancer Institute's Cancer Trials Support Unit, providing resources and information on Phase III cancer treatment trials supported by the National Cancer Institute.  ::SELECTED TRIALS::



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Free eNewsletters
Free LLS eNewsletters deliver the latest information on research and treatment options, patient services programs and fundraising events.
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LLS Features

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My Personal Clinical Trials Journey
Participate in this personalized and interactive program that follows the stories and experiences of three cancer survivors who have participated in clinical trials.

Co-Pay Assistance Program
Patients with myeloma who have difficulty paying for or simply cannot afford their prescription drug co-pays or health insurance premiums can now apply for up to $5,000 in assistance from LLS.

Archived Educational Events
Experience archived  Myeloma teleconferences and Webcasts free of charge, anytime. Also, the opportunity to download the audio file, read the written transcript or listen online to the recent program Myeloma: Understanding Drug Therapy and Stem Cell Transplantation are now available on the LLS Web site.

LLS Advocacy
LLS's advocacy team represents the needs of cancer patients and their families in Washington, DC and state capitals throughout the United States. We need your help. Join our Advocates Network and make your voice heard. 

Take Action: Urge Congress to Co-Sponsor Access to Cancer Clinical Trials Legislation
 
Patient Services Survey
Please give us your feedback by completing LLS Disease & Treatment Publications - Survey for Patients, Family and Friends.

LLS Blog

The Leukemia & Lymphoma Society is committed to curing blood cancers and helping patients and their families. Learn the many ways you can help advance LLS's mission. 

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Research Roundup

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Anti-DKK1 mAb (BHQ880) as a potential therapeutic agent for multiple myeloma.  ::READ MORE::
 
The treatment of multiple myeloma using vincristine, carmustine, melphalan, cyclophosphamide, and prednisone (VBMCP) alternating with high-dose cyclophosphamide and alpha(2)beta interferon versus VBMCP: results of a phase III Eastern Cooperative Oncology Group Study E5A93.  ::READ MORE::
 
Comparison of whole-body MR imaging and conventional X-ray examination in patients with multiple myeloma and implications for therapy.  ::READ MORE::
 
Emerging treatments for multiple myeloma: beyond immunomodulatory drugs and bortezomib.  ::READ MORE::
 
Long-term outcome in relapsed and refractory multiple myeloma treated with thalidomide. Balancing efficacy and side-effects.  ::READ MORE::

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Clinical Trials
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Selected Trials

Phase II: Celgene High Risk Multiple Myeloma (MM) Revlimid Induction and Maintenance RX  ::READ MORE::

Phase II Study of Thalidomide, Clarithromycin, Lenalidomide, and Dexamethasone for Newly Diagnosed Multiple Myeloma (T-BiRD)  ::READ MORE::

Phase III Study of Vorinostat (MK0683) an HDAC Inhibitor, or Placebo in Combination with Bortezomib in Patients With Multiple Myeloma  ::READ MORE::

Phase II Trial of Romidepsin and Bortezomib for Multiple Myeloma  ::READ MORE::

A Study of Sativex® for Pain Relief in Patients with Advanced Malignancy  ::READ MORE::

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IRC Question of the Month
Q&A

Q: I have just started chemotherapy, and I enjoy going to the beach in the summer. Are there any precautions I should take?

A: Everyone should reduce their exposure to the harmful effects of the sun's ultraviolet (UV) rays because of the risk of skin cancers. In addition, patients with myeloma should avoid all direct sun exposure after completing certain drug and/or radiation therapy. Treatment often makes the skin more sensitive to the effects of the sun.

Skin-related side effects of treatment may include dryness, redness, itchiness or lesions. These may occur during and after drug or radiation therapy. Patients should check with their treatment teams about specific sun-related effects of their therapy. They may be related to treatment, to the disease itself or to complications such as infection. If you're preparing a vacation that may include sun exposure it is best to get a medical guidance about appropriate precautions, including topical solutions (creams, lotions or gel) to protect, soothe, soften or moisturize skin or to prevent itching.

Plan outdoor activities for early morning or late afternoon. Seek natural shade from trees or other shelter. UV rays are reflected by sand, water and snow; so take extra care when on a beach, boating or skiing holiday. Use a sunscreen with a sun protective factor (SPF) of 15 or higher in general and choose one that protects against all of the sun's rays. Wear an SPF 30 sunscreen on any areas directly affected by treatment with radiation. Sunscreen must be reapplied after swimming or sweating.

If you lose your hair because of therapy, protect your head from sun exposure and irritation by wearing soft hats or scarves. Wearing a wide-brimmed hat, long-sleeved shirts and trousers when in the sun is also suggested. Try to avoid lightly woven fabrics as they may allow rays through. New clothing lines have been developed to protect against UV rays .

Please call our Information Resource Center (IRC) to speak with a trained information specialist. IRC staff are available Monday through Friday, 9 a.m. to 6 p.m. ET, toll free at (800) 955-4572. Contact us online or click the "Live Patient Help" button on the www.LLS.org homepage.

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Supported by an unrestricted
educational grant from
Allos Therapeutics, Inc Cephalon Oncology
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