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Welcome to MyelomaLinks,
your monthly source of myeloma news,
research updates, clinical trials
and events of The Leukemia & Lymphoma
Society (LLS). For even more information,
regularly visit our Patient
Services and Disease
Information Web
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LLS
Features
::READ MORE::
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Research
Roundup ::READ MORE::
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IRC Question of
the Month
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MORE::
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Inspirational
Stories
 Learn
how individuals touched by blood cancer
cope. LLS's LifeMosaic
Web feature offers hundreds of
inspiring stories by patients and families. Read
them or submit
your own.
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Here to
Help
For even more information,
regularly visit the LLS Web site,
www.LLS.org, where many of our education programs
are archived free of charge for convenient
access 24/7.
If you haven't found what
you're looking for in MyelomaLinks ,
please call our Information Resource Center
(IRC) to speak with trained information
specialists. IRC staff are available Monday
through Friday, 9 a.m. to 6 p.m. ET, toll free
at (800) 955-4572; email infocenter@lls.org; or click the "Live Patient Help" button
on the www.LLS.org homepage.
Please consider
a tax-deductible gift to LLS. Donate
online today and help us make
a difference in the lives of patients and their
families. | |
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Commentary
Deborah
Banker, Ph.D., shares exciting
advances in stem
cell transplantation.
Clinical Trials
We invite you to use
our LLS-supported TrialCheck® Web site
, a clinical trial search service that
offers patients and caregivers immediate access
to listings of all myeloma clinical trials.
Answer just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy-to-read list of search
results. ::SEE CLINICAL
TRIALS::
You may also want to
visit the National Cancer Institute's Cancer
Trials Support Unit, providing resources
and information on Phase III cancer treatment
trials supported by the National Cancer
Institute.
Newsfeeds &
Podcasts
Now
you can get RSS Feeds and Podcasts from LLS.
::
CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
::CLICK HERE TO SIGN
UP::
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Balloon
kyphoplasty effective for malignant spinal
fractures
Balloon kyphoplasty provides
pain relief and functional improvement in
patients with malignant spinal fractures, say
researchers. Balloon kyphoplasty is performed
percutaneously in an effort to relieve pain,
restore vertebral height, and reduce
biomechanical alterations of the spine caused by
fractures, the authors explain.
Lenalidomide/bortezomib
safe, promising against relapsed multiple
myeloma
The combination of the
immunomodulatory drug lenalidomide and the
proteasome inhibitor bortezomib appears to be
both safe and potentially able to induce durable
responses in patients with relapsed or
relapsed/refractory multiple myeloma, U.S.
researchers report online in the Journal of
Clinical
Oncology.
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Archived
Educational Events
Experience archived
Myeloma teleconferences and Webcasts free of
charge, anytime. Also, the opportunity to
download the audio file, read the written
transcript or listen online to the recent
program Managing Myeloma: An Expert's Update are
now available on the LLS Web site.
Online
Support Groups
Enroll in new
Online Support Groups: free, password protected
weekly groups led by trained professionals for
adults living with leukemia, lymphoma, myeloma
and myelodysplastic syndromes and their
caregivers. Through these groups, we
invite you to receive and share support,
feedback and information with other people
living with blood cancers and their loved
ones.
Financial
Health Matters
This new internet
webcast for patients, family members and
healthcare professionals, focuses on the
financial impact a cancer diagnosis can have and
the various insurance programs and resources
available for information and support.
View the webcast or print/read the program
transcript and slides of this program.
Co-Pay
Assistance Program
Patients with myeloma
who have difficulty paying for or simply cannot
afford their prescription drug co-pays or health
insurance premiums can now apply for up to
$5,000 in assistance from LLS.
LLS
Advocacy
LLS's advocacy team represents
the needs of cancer patients and their families
in Washington, DC and state capitals throughout
the United States. We need your help. Join
our Advocates Network and make your voice
heard.
Act
Now! - Urge Congress to Improve Comprehensive
Cancer Care
Free
Materials
New detailed and
basic publications are now available in
English and Spanish. To view and order, see
Myeloma,
The
Myeloma Guide, Pain
Management, Mieloma,
La
guía sobre el mieloma and
Manejo
del dolor.
We'd Like to Hear from
You!
Please give us your feedback
after you read an LLS Publication by completing
our evaluation:
LLS
Disease & Treatment Publications - Survey
for Patients, Family and Friends
Nos gustaría saber sus
opiniones
Por favor denos sus
comentarios después de leer una publicación de
LLS completando nuestra evaluación:
Publicaciones
de LLS sobre enfermedades y tratamiento:
Encuesta para pacientes, familiares y
amigos
LLS Blog
The Leukemia & Lymphoma
Society is committed to curing blood cancers and
helping patients and their families. Learn
the many ways you can help advance
LLS's mission.
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Single-agent bortezomib in previously
untreated multiple myeloma: efficacy,
characterization of peripheral neuropathy, and
molecular correlations with response and
neuropathy. ::READ
MORE::
Long-term follow-up on overall survival from
the MM-009 and MM-010 phase III trials of
lenalidomide plus dexamethasone in patients with
relapsed or refractory multiple myeloma. ::READ
MORE::
Phase II study of thalidomide plus
dexamethasone induction followed by tandem
melphalan-based autotransplantation and
thalidomide-plus-prednisone maintenance for
untreated multiple myeloma: a southwest oncology
group trial (S0204). ::READ
MORE::
Post-transplant immunotherapy with
donor-lymphocyte infusion and novel agents to
upgrade partial into complete and molecular
remission in allografted patients with multiple
myeloma. ::READ
MORE::
Efficacy of melphalan and prednisone plus
thalidomide in patients older than 75 years with
newly diagnosed multiple myeloma: IFM 01/01
trial. ::READ
MORE::
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Lenalidomide, Thalidomide and Dexamethasone
in Relapsed/Refractory Multiple Myeloma ::READ
MORE::
Doxil® + Melphalan + Velcade (DMV) in
Relapsed/Refractory Multiple Myeloma ::READ
MORE::
Phase III Study to Determine Efficacy and
Safety of Lenalidomide Plus Low-Dose
Dexamethasone versus Melphalan, Prednisone,
Thalidomide in Patients with Previously
Untreated Multiple Myeloma (FIRST) ::READ
MORE::
Flu Vaccine in Preventing Influenza Infection
in Healthy Volunteers and in Patients Who Have
Undergone Stem Cell Transplant ::READ
MORE::
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IRC Question of
the Month
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Q:
How can I be an active participant in my care?
A: You can play a vital role
in your wellbeing by being involved in your own
care. Participating can help you understand how
your disease is being managed, make informed
decisions and feel more in control of your life.
5 Important Steps for Participating
in Your Healthcare
1. Learn all you can about your diagnosis.
- Know your specific disease type, stage of
disease and what all of your potential treatment
options are, including treatments in clinical
trials.
2. Get the most from your meetings with your
doctor and other members of your healthcare
team.
- Prepare ahead of your medical appointments.
Bring a list of questions and concerns with you.
Maintain a list in between appointments so you
can record questions and concerns as they arise.
Be assertive. Ask questions until you receive a
complete explanation. If your doctor provides
information that is too technical or limited in
scope, ask that he/she provide you with
information that is more patient-friendly. Take
notes or tape record the session so you can
easily recall and review the responses at a
later time. If possible, bring someone with you
to appointments to take notes and be a second
"pair of ears."
3. Follow medical advice.
- Keep all medical appointments. Take at-home
medications as instructed. Following
instructions for preventing infections. Maintain
healthy diet, exercise and sleep habits.
4. Keep a file with copies of your medical
records and other diagnostic and treatment
information.
- Keep copies of your medical history, your
test results and the medications used to treat
you. Include you started and stopped
medications, any side effects, a list of
medications you take for other health reasons,
such as blood pressure medication. Keeping
copies and/or recording key information will
enable you to refer it for discussions with
members of your healthcare team.
5. Seek support and network with other people
who have your diagnosis.
- This is an excellent way to learn more about
the disease, what to expect from treatment,
share common concerns and gain support.
To help you advocate for yourself,
LLS offers you
- Educational materials that provide this
helpful information regarding blood cancers. Click
here for free Disease, Treatment and Support
booklets and fact sheet.
- A
clinical trial service using an easy search tool
and/or our Information Specialists. In fact,
if you have any questions about leukemia,
lymphoma or myeloma give our information
specialists a call at 1-800-955-4572 or contact
us online. We're available Monday through
Friday from 9 a.m. to 6 p.m. ET.
- Free live telephone and Web-based education
programs that feature disease experts who
present information about the latest on disease
research and treatment. If you are unable to
take part the day of the program, an audio and
written transcript on saved our Web site. Click
here for more information. To be notified by
email of our upcoming programs you may register,
for email alerts, on our homepage ( www.LLS.org).
- Support services all over the United States
and Canada to meet the needs of patients,
caregivers and families. Please contact your
local chapter office to learn more and become
active. To identify your local chapter, input
your Zip or Postal Code in the Chapter Finder
tool on our homepage (www.LLS.org).
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact
us online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
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Supported by an
unrestricted
educational grant
from
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Contact Us: The
Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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