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Welcome to MyelomaLinks,
your monthly source of myeloma news,
research updates, clinical trials
and events of The Leukemia & Lymphoma
Society (LLS). For even more information,
regularly visit our Patient
Services and Disease
Information Web
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LLS
Features
::READ
MORE::
.....................................................................................................................................
Research
Roundup ::READ
MORE::
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IRC Question of
the Month
:: READ
MORE::
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Inspirational
Stories
 Learn
how individuals touched by blood cancer
cope. LLS's LifeMosaic
Web feature offers hundreds of
inspiring stories by patients and families. Read
them or submit
your own.
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Here to
Help
For even more information,
regularly visit the LLS Web site,
www.LLS.org, where many of our education programs
are archived free of charge for convenient
access 24/7.
If you haven't found what
you're looking for in MyelomaLinks ,
please call our Information Resource Center
(IRC) to speak with trained information
specialists. IRC staff are available Monday
through Friday, 9 a.m. to 6 p.m. ET, toll free
at (800) 955-4572; email infocenter@lls.org; or click the "Live Patient Help" button
on the www.LLS.org homepage.
Please consider
a tax-deductible gift to LLS. Donate
online today and help us make
a difference in the lives of patients and their
families. | |
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Commentary
Deborah
Banker, Ph.D., shares news on telomeres and Nobel
prizes.
Clinical Trials
We invite you to use
our LLS-supported TrialCheck® Web site
, a clinical trial search service that
offers patients and caregivers immediate access
to listings of all myeloma clinical trials.
Answer just a few simple questions and a list of
available clinical trials related to your cancer
will appear in an easy-to-read list of search
results. ::SEE CLINICAL
TRIALS::
You may also want to
visit the National Cancer Institute's Cancer
Trials Support Unit, providing resources
and information on Phase III cancer treatment
trials supported by the National Cancer
Institute.
Newsfeeds &
Podcasts
Now
you can get RSS Feeds and Podcasts from LLS.
::
CLICK HERE TO SIGN
UP::
Free
eNewsletters
Free LLS
eNewsletters deliver the latest information on
research and treatment options, patient services
programs and fundraising events.
::CLICK HERE TO SIGN
UP::
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Don't
Let Insurance Restrictions Cripple Cancer
Research
It is rare that Florida's
lawmakers are called upon to support an issue
that requires no legislative action. As Congress
struggles in Washington to address the issue of
health care, The Leukemia & Lymphoma Society
and Humana Inc. urge our leaders in the Florida
Legislature to support a health care issue that
will prove to be a tremendous benefit to cancer
patients, health care providers and insurers
alike.
> Back to the
top
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Managing
Myeloma: An Expert's Update
Register for this free telephone education
program taking place on Thursday, October 29,
2009 with featured speaker Kenneth C. Anderson,
MD, Kraft Family Professor of Medicine, Harvard
Medical School, Chief, Division of Hematologic
Neoplasia, Director, Lebow Institute for Myeloma
Therapeutics and Jerome Lipper Multiple Myeloma
Center, Vice Chair, Joint Program in Transfusion
Medicine, Dana-Farber Cancer Institute, Boston,
MA.
Online
Support Groups
Enroll in new
Online Support Groups: free, password protected
weekly groups led by trained professionals for
adults living with leukemia, lymphoma, myeloma
and myelodysplastic syndromes and their
caregivers. Through these groups, we
invite you to receive and share support,
feedback and information with other people
living with blood cancers and their loved
ones.
Financial
Health Matters
This new internet
webcast for patients, family members and
healthcare professionals, focuses on the
financial impact a cancer diagnosis can have and
the various insurance programs and resources
available for information and support.
View the webcast or print/read the program
transcript and slides of this program.
Co-Pay
Assistance Program
The Leukemia &
Lymphoma Society's (LLS) Co-Pay Assistance
Program offers financial assistance up to $5000
to qualified myeloma patients to help with
treatment related expenses and insurance
premiums. Patients may apply online or over the
phone with a Co-Pay Specialist.
LLS
Advocacy
LLS's advocacy team represents
the needs of cancer patients and their families
in Washington, DC and state capitals throughout
the United States. We need your help. Join
our Advocates Network and make your voice
heard.
Act
Now! Urge Congress to Improve Comprehensive
Cancer Care
Free
Materials
New detailed and basic myeloma
booklets are now available in English and
Spanish. To view and order, see Myeloma,
The
Myeloma Guide, Mieloma
and La
guía sobre el mieloma.
We'd Like to Hear from
You!
Please give us your feedback
after you read an LLS Publication by completing
our evaluation:
LLS
Disease & Treatment Publications - Survey
for Patients, Family and Friends
Nos gustaría saber sus
opiniones
Por favor denos sus
comentarios después de leer una publicación de
LLS completando nuestra evaluación:
Publicaciones
de LLS sobre enfermedades y tratamiento:
Encuesta para pacientes, familiares y
amigos
LLS Blog
The Leukemia & Lymphoma
Society is committed to curing blood cancers and
helping patients and their families. Learn
the many ways you can help advance
LLS's mission.
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Autologous hematopoietic stem cell
transplantation may reverse renal failure in
patients with multiple myeloma. ::READ
MORE::
Bortezomib in combination with pegylated
liposomal doxorubicin and thalidomide is an
effective steroid independent salvage regimen
for patients with relapsed or refractory
multiple myeloma: results of a phase II clinical
trial. ::READ
MORE::
Cyclophosphamide, bortezomib and
dexamethasone induction for newly diagnosed
multiple myeloma: high response rates in a phase
II clinical trial. ::READ
MORE::
Expanded safety experience with lenalidomide
plus dexamethasone in relapsed or refractory
multiple myeloma. ::READ
MORE::
Bortezomib alone or in combination with the
histone deacetylase inhibitor JNJ-26481585:
effect on myeloma bone disease in the 5T2MM
murine model of myeloma. ::READ
MORE::
> Back to the
top
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 Phase
III Study of Vorinostat (MK0683) an HDAC
Inhibitor, or Placebo in Combination With
Bortezomib in Patients With Multiple Myeloma
::READ
MORE::
UARK 2008-01, Total Therapy 4 - A Phase III
Trial for Low Risk Myeloma (TT4) ::READ
MORE::
Phase II Study of the Safety and
Effectiveness of CNTO 328 When Added to
Velcade-Melphalan-Prednisone in Patients With
Multiple Myeloma ::READ
MORE::
Phase II: Lenalidomide (Revlimid) Plus
Low-Dose Dexamethasone (Ld x 4 Cycles) Then Stem
Cell Collection Followed by Randomization to
Continued Ld or Stem Cell Transplantation (SCT)
Plus Maintenance Ld for SCT Patients Not
Achieving at Least Very Good Partial Response
(VGPR) or Having High-Risk Disease ::READ
MORE::
Flu Vaccine in Preventing Influenza Infection
in Healthy Volunteers and in Patients Who Have
Undergone Stem Cell Transplant ::READ
MORE::
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to the
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IRC Question of
the Month
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Q: I
was diagnosed with myeloma and it would help me
to talk to someone who living with my disease.
Is this type of support available for me and my
family?
A: Many people who are
diagnosed with myeloma are anxious because at
first, it's hard to know what to expect or how
to cope day-to-day. Worry about one's family is
another common reaction. Please know that you
are not alone and support is available. LLS
provides support for patients and their family
members at every stage of diagnosis and
treatment.
First Connection is a
program that will put you in touch with a
trained peer volunteer who has "been there."
This may help you to cope with the stresses of
your diagnosis and treatment. Family members are
also eligible for this free program.
Patient and Family Support
Groups are offered through local LLS
chapters. These groups offer comfort and
understanding to patients and their families.
Patients, family members and friends affected by
myeloma or another blood cancer are invited to
attend free of charge at local LLS chapters.
Please contact the Patient Services Manager
at your local LLS chapter to find out more about
First
Connection and Family
Support Groups. To find your local
chapter, visit www.LLS.org.
Enter your ZIP code at the top right of the Web
page and click on Chapter
Finder.
LLS offers more support via our Web site.
The LLS Blood Cancer Discussion
Boards are peer-to-peer support online
communities where you can exchange ideas and
experiences, pose questions and offer support.
The Discussion Boards can be accessed by clicking
here.
Free LLS Online Weekly Support
Groups, in partnership with The
Wellness Community, are confidential groups led
by trained professionals for adults living with
myeloma or other blood cancers. To get to
specific information on these groups, please click
here
.
Please call our
Information Resource Center (IRC) to speak with
a trained information specialist. IRC staff are
available Monday through Friday, 9 a.m. to 6
p.m. ET, toll free at (800) 955-4572. Contact
us online or click the "Live
Patient Help" button on the www.LLS.org
homepage.
> Back to the top
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unrestricted
educational grant
from
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Contact Us: The
Leukemia & Lymphoma Society, 1311 Mamaroneck
Ave., White Plains, NY 10605, (800)
955-4572
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